FAQ
Frequently Asked Questions
Registering as an organ, eye and tissue donor is an incredible gift! It means that you are agreeing to donate your organs, eyes and tissues to people in need when your life is over. Learn the facts about registering as an organ, tissue and eye donor. We understand you may have questions. If we haven’t answered your questions here, please contact us.
Wisconsin’s Donor Registry
When you add your name to the Wisconsin Donor Registry, it means you have authorized the gift of your organs, tissues, and eyes upon your death. Registering indicates legal consent for donation. Your gift will be used to save and improve the lives of others through transplantation, therapy, research or education.
Please see this FAQ regarding the Wisconsin Donor Registry.
Living Donation
What organs can a person donate?
The two most transplanted organs from a living donor is either a kidney or segment of a liver.
What are the benefits of a living donor transplant vs. deceased donor transplant?
Living donor transplants have a higher success rate and generally start functioning immediately after transplant. They have a quicker recovery time & have improved long-term outcomes. Living donor surgeries can be scheduled, allowing preparation time for both the donor and the recipient.
A living donor transplant decreases the time a person has to wait to receive a transplant as well as increases the number of organs available to those on the deceased donor transplant waiting list.
What factors should be considered in making the decision to donate?
The decision to donate can vary from person to person. Some people make the decision instantly while others may need time to think and talk to family or friends before deciding to donate.
It is normal for a person to feel afraid to donate or guilty about not wanting to be a donor.
People should not feel pressured to donate. Any person considering donation should speak to the living donor team and their independent living donor advocate at the transplant center for answers to their questions or to discuss their concerns.
The only ‘right’ decision is the one that is comfortable for the donor.
Who can be a living donor?
Living donors must be 18 years of age or older and be able to give consent. They need to be in good physical and mental health. Some medical conditions such as kidney disease, liver disease, diabetes, uncontrolled high blood pressure, obesity, cancer or an uncontrolled psychiatric condition could prevent someone from being a living donor. The transplant center team can provide more information about their criteria for living donors. Potential donors need to share all of their physical and mental health information with the transplant center team. It is also very important that the decision to donate is completely voluntary and free of pressure.
Does a person need to match the blood type of a potential recipient in order to donate?
Kidney – No, a living kidney donor does not need to be the same blood type as their recipient. Living kidney donation provides the donor and recipient pairs with alternative options. The transplant team will decide which option is best for both the donor and the recipient.
Liver – Yes, a liver donor needs to have the same blood type as the recipient.
Blood type O is the universal donor. This means they can donate an organ to all blood types.
- Blood type AB is the universal recipient. This means they can receive an organ from all blood types.
- The +/- in a blood type does not matter in transplant
What is a Paired Kidney Exchange?
At this time, paired exchange programs are available for kidney donors and their recipients. In a paired exchange, a donor will donate their kidney to another recipient in exchange for a kidney that matches their recipient. Kidney paired donation (KPD) is a transplant option for recipients who have a living donor who is medically able, but cannot donate a kidney to them because they are poorly matched.
What does living donation surgery involve?
Kidney donation – The surgical procedure to remove a kidney is called a laparoscopic nephrectomy. During this procedure, the surgeon will make two small incisions for their instruments and a slightly larger incision (~3 inches) to remove the kidney on the abdomen. The surgery is approximately 2-3 hours long. There are several benefits to having a laparoscopic nephrectomy. Some of these benefits include a decrease in discomfort after surgery requiring less pain medication, a shorter length of stay in the hospital and a faster recovery period.
Liver donation – The surgical procedure to remove a portion of the liver is called a partial hepatectomy. An incision is made across the abdomen to locate the appropriate portion of the liver being removed. The surgery is approximately 6-8 hours long.
What are the risks that should be considered before becoming a living donor?
All donors complete a thorough medical evaluation prior to donation which includes meeting with the transplant multidisciplinary team as well as testing. The multidisciplinary team includes a Nephrologist, Surgeon, Pharmacist, Dietician, Social Worker, Transplant Psychologist, Coordinator and an Independent Living Donor Advocate.
Kidney donation – Some of the testing completed for a kidney donor may include an EKG, a CT scan, a chest x-ray, nuclear medicine GFR study and bloodwork
Liver donation – Some of the testing completed for a liver donor may include an EKG, a CT scan, MRI, chest x-ray and bloodwork.
All costs related to the medical evaluation are covered by the recipient’s health insurance.
While there are risks to all medical procedures the risks of a person having lifelong complications after donation are minimal. A transplant center will only move forward with a donor if they truly feel donation is in their best interest.
Will the donor’s lifestyle change after donation?
Kidney donation – A kidney donor’s overall long-term survival is similar to those who have not donated a kidney. Their risk of developing end-stage renal disease (ESRD) is significantly lower than the general unscreened public. There are no dietary or lifestyle changes a donor needs to make after donation except for the use of NSAID’s or Non-Steroidal Anti-inflammatory Drugs, as these drugs can be harmful to the kidneys. Common drugs in this class include Ibuprofen, Alieve and Naproxen.
Liver donation – A liver donors overall long-term survival is similar to those who have not donated a liver. A liver donor will need to abstain from alcohol for one year after donation.
All donors are highly encouraged to continue a healthy lifestyle and see their primary care providers on an annual basis to ensure continued health.
What is recovery like for a living donor?
Kidney donation – The average recovery time for a kidney donor is 4-6 weeks. A donor will stay in the hospital for 2-3 days. The remaining recovery is done at home. There is a 10 pound lifting restriction after surgery for 6 weeks. This lifting restriction is to help prevent a hernia from developing.
Liver donation – The average recovery time for a liver donor is 8 weeks. A donor will stay in the hospital for about 7 days. They will be in the ICU for 2 of these days to closely monitor their status and pain control. Pain control is an important part of the recovery process especially the week after surgery.
Liver donors will have a large abdominal incision with drains placed as well as a nasogastric tube during their hospital stay. There is a 10 pound lifting restriction after surgery for 8 weeks. Liver donors cannot drive while on narcotics so most donors need someone to take them to their first follow up appointments after surgery.
All transplant centers are required to follow their donors for two years after donation. Donors are seen 7-10 days after surgery as well as at six months, one year and two years after donation. Blood and urine samples are collected at each appointment. Once the two year reporting period is complete, donors are encouraged to follow with their primary care providers and have blood and urine samples tested annually.
Can women get pregnant/have children after organ donation?
Yes, women of childbearing age can get pregnant and have children after kidney or liver donation. The surgical procedures to remove a kidney or liver do not affect the reproductive organs.
Who pays for a donor’s medical costs?
All costs related to donation such as the evaluation, testing and surgery are covered by the recipient’s insurance. Personal expenses such as travel, housing, child-care costs and lost wages however are not covered by the recipient’s insurance. Resources such as the National Living Donor Assistance Center (NLDAC) may be available to help cover some of these expenses. During the evaluation process a Social Worker will meet with the donor to discuss all financial aid programs available to them. Employers may provide FMLA to their employees per the Wisconsin Assembly Bill 752.
What is a donor’s overall experience after living donation?
Living donors generally rate their overall experience as positive and say in retrospect, they would have still made the decision to donate. Most published reports indicate that donors have an improved sense of well-being, a boost in self-esteem and report an excellent quality of life after donation.
Grants
What is the DLW grants program?
DLW is authorized to provide funds to organizations to promote the donation of organs and tissue, to promote organ and tissue transplant research, and to advance patient services involving organ and tissue transplants in Wisconsin.
What is an eligible organization/who can apply?
Organizations that are eligible to apply or serve as the lead organization for a project must be recognized as exempt for federal taxation under Section 501(c)3 of the IRS Code, be able to provide proof of charitable status in Wisconsin (if applicable) and be able to submit an audited financial statement at the conclusion of the grant, if requested by Donate Life Wisconsin.
May organizations collaborate on a proposed project?
Organizations proposing to collaborate on a project must include at least one organization that meets all eligibility criteria. This organization will be considered the primary (lead organization . The lead organization will sign the Grant Agreement, serve as the fiscal agent and assume responsibility to meet all reporting requirements.
Can an organization that provides services in states other than Wisconsin be eligible?
If an organization performs its programs in states in addition to Wisconsin, the Grantee must limit any funding that it receives from DLW to its Wisconsin activities.
Can an individual apply for a DLW grant to encourage organ and tissue donation?
Individuals are not eligible to receive grants.
What are permitted use of funds?
Permitted use of grant funds is defined in the DLW Grants policy and outlined in the Request for Proposal document. Examples of allowable expenses include consultant, contract or staff time to implement the project; office supplies, postage, copying related to the project; meeting expenses related to the project.
What are examples of expenses not permitted?
Non-allowable use of DLW grant funding:
- Expenses billed to/reimbursed from federal/state agencies or other entities e.g., CMS
- Personal expenses, e.g., cost of living, fines, damages
- Clinical care or other costs associated with treatment or direct care
- Direct or indirect lobbying activities or legal fees
- Financial gifts, e.g., scholarships, endowments, aid, gift cards
- Entertainment or alcoholic beverages
- Costs or activities not directly related to the project implementation
What components must be In the letter of intent (LOI)?
Organizations must complete a separate Letter of Intent (LOI) for each project. The components of the LOI include:
- Organization information
- Project contact
- Project name
- Type and focus of the project
- Need project will address
- Data substantiating the need
- Project overview with anticipated outcomes
- Impact Statement (Answer one or both questions):
- How will this project increase the number of individuals who register to become organ, eye and tissue donors?
- How will this project increase the number of donated organs/tissues available for transplantation?
- Funding amount requested ($10,000-$50,000)
How can an organization apply for a DLW grant?
Eligible organizations complete and submit a Letter of Intent (LOI) by the deadline. Organizations may be invited to submit a full proposal after review.
What are the largest and smallest amounts that an organization may request?
Each year, the Donate Life Wisconsin Board of Directors establishes the budget allocation for the Grants program.
What are the reporting requirements?
Grant project leads submit monthly reports about project progress, learnings and requests for expense reimbursement. Monthly financial reports include detailed use of grant funds, including receipts documenting expenses. At the conclusion of the project, grantees may be asked to submit an audited financial statement detailing the use of the grant funds.
What is the timeline?
The Innovations & Impact Grant program timeline:
- April 29 – LOI online submissions open
- April 30 – Grants process (virtual) information session (revised date)
- June 3 – LOI online submissions due
- June 17 – LOI submission status notification to applicants
- June 17 – Invitations to submit full grant proposals issued
- July 29 – 2025 full grant proposals due
- Aug 26 – Notifications to grant finalists
- Oct – TBD Finalists’ presentations to DLW Board of Directors
- Oct 28 – Projects selected for 2025 announced